{"id":1817,"date":"2020-01-30T18:34:09","date_gmt":"2020-01-30T18:34:09","guid":{"rendered":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/?p=1817"},"modified":"2020-01-30T18:35:31","modified_gmt":"2020-01-30T18:35:31","slug":"unique-cooper-patient-registry-for-cancer-and-pregnancy-an-invaluable-resource-for-physicians-and-patients","status":"publish","type":"post","link":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/2020\/01\/30\/unique-cooper-patient-registry-for-cancer-and-pregnancy-an-invaluable-resource-for-physicians-and-patients\/","title":{"rendered":"Unique Cooper Patient Registry for Cancer and Pregnancy An \u201cInvaluable Resource\u201d for Physicians and Patients"},"content":{"rendered":"
\"\"

Dr. Cardonick is pictured in front of a photo wall of mothers who were pregnant with cancer and went on to have their own treatment in pregnancy while saving their child.<\/p><\/div>\n

\u201cOnly one in a thousand women are diagnosed with cancer when they\u2019re pregnant,\u201d says maternal-fetal medicine and cancer and pregnancy specialist Elyce H. Cardonick, MD<\/a>, Director of Cooper\u2019s Cancer and Childbirth Registry. \u201cIn many cases, the patient\u2019s obstetrician never had a cancer patient and their oncologist never had a pregnant patient, so neither physician has a large number of patients on which to base care decisions.\u201d<\/p>\n

\"Elyce

Elyce H Cardonick, MD, FACOG<\/p><\/div>\n

Now, with the Cooper Cancer and Pregnancy Registry, they do. With more than 428 women and 464 children in its database to date, the registry is the only one of its kind in the U.S. and one of only two in the world (the other is in Europe). Breast cancer is by far the most common cancer seen in this patient population, but the registry also has collected information on women with Hodgkin and non-Hodgkin lymphoma, melanoma, and other cancer types.<\/p>\n

\u201cThe purpose of our program is to pool information from this complex patient population and answer questions such as \u2018How do 200 women do in a particular situation versus one physician\u2019s experience with three women?\u2019\u201d Dr. Cardonick says. The registry serves as a resource for physicians as well as patients around the world. It is informing\u2014and changing\u2014 the way pregnant women are treated for cancer.<\/p>\n

\u201cWhat we\u2019re learning is that most types of cancer don\u2019t require termination of pregnancy,\u201d she continues. \u201cIn fact, when I started the registry in 1997, 20% of doctors recommended termination; today, that\u2019s down to 12%. Plus, we\u2019ve learned that preterm delivery is not always necessary. So we\u2019re able to reassure women that they don\u2019t necessarily have to terminate or choose their baby over themselves.\u201d<\/p>\n

Dr. Cardonick also is doing long-term tracking of the children born to women in the registry\u2014something no one else is doing.<\/p>\n

\"Generosa

Generosa Grana, MD, FACP<\/p><\/div>\n

\u201cThe data are showing us how women can have surgery, x-rays and, amazingly, even certain types of full-dose chemotherapy during pregnancy without harming their baby,\u201d she says. \u201cBy accumulating the data in one place, we\u2019re able to see patterns and trends\u2014and reassure women and physicians about care decisions and the impact they have on child development, breastfeeding, and more.\u201d<\/p>\n

\u201cDr. Cardonick is the country\u2019s leading expert on cancer and pregnancy, and this is the largest registry in the United States that collects data on women and children exposed to chemo during pregnancy,\u201d says Generosa Grana, MD<\/a>, director of the MD Anderson Cancer Center at Cooper. \u201cIt\u2019s an invaluable resource for giving women and their doctors choices that they didn\u2019t have in the past.\u201d<\/p>\n

\u201cIt\u2019s important not to be hasty in forcing termination or embarking on treatment without taking advantage of the knowledge available via this registry,\u201d she stresses. \u201cDr. Cardonick is always available to speak to community physicians or the patient herself dealing with this difficult and frightening situation.\u201d<\/p>\n

\u201cWe appreciate the opportunity to enroll a patient in our registry, even if they\u2019re not seen here at Cooper, and regardless of their location,\u201d Dr. Cardonick adds. \u201cAnd I\u2019m happy to collaborate or consult with physicians anywhere, too, to share what we know about cancer and pregnancy.\u201d<\/p>\n

She also can recommend patient support resources, including a virtual support group, Hope for Two, based in Buffalo, New York, that matches individual patients with others in a similar situation.<\/p>\n

\n

For more information, please contact Dr. Cardonick at 1.877.635.4499 or email CancerInPregnancy@cooperhealth.edu<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

\u201cOnly one in a thousand women are diagnosed with cancer when they\u2019re pregnant,\u201d says maternal-fetal medicine and cancer and pregnancy specialist Elyce H. Cardonick, MD, Director of Cooper\u2019s Cancer and Childbirth Registry. \u201cIn many cases, the patient\u2019s obstetrician never had a cancer patient and their oncologist never had a pregnant patient, so neither physician has … [Read more…]<\/a><\/span><\/p>\n","protected":false},"author":7,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,169],"tags":[],"class_list":{"0":"entry","1":"post","2":"publish","3":"author-rmineo","4":"post-1817","6":"format-standard","7":"category-featured","8":"category-patient-programs"},"_links":{"self":[{"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/posts\/1817","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/comments?post=1817"}],"version-history":[{"count":2,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/posts\/1817\/revisions"}],"predecessor-version":[{"id":1826,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/posts\/1817\/revisions\/1826"}],"wp:attachment":[{"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/media?parent=1817"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/categories?post=1817"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.cooperhealth.org\/sjmedicalreport\/wp-json\/wp\/v2\/tags?post=1817"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}